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Posted by responce to tami w/sick daughter on September 29, 2000 at 18:36:37:

In Reply to: My daughter may have GWI posted by tami on September 28, 2000 at 23:59:42:

: Until a few months ago, I never associated my seven year old daughters illness with the Gulf War. My husband was a Marine in the Gulf War. His unit was a LAV unit in Kuwait. Anyway, in 1993 I beacame pregnant and had a normal pregnancy. A little while after my daghter was born, my husband started having bad stomach pains with diarrea. He is tired a lot and has dark circles under his eyes. My daughter seemed to always have a cold or some sort of infection; however lately it seems as though everything is going wrong with her. She was diagnosed with a learning disability, ADD, Mitral Valve Prolapse, Irregular heartbeats (PVC), sensativity to odors and noise, dark circles under her eyes, lose of appetite, headaches, severe stomach pains (occasionally w/vomitting)and some leg pains. Her spouts with stomach pains and headaches are coming closer together . Maybe six times a month. Her physcian thought she had a stomach virus that she could not fight off; however, since all these symptoms did not come out until this past year, I started to think this is more than a coincedence. These symptoms have to have the same underlying cause. So, I've been doing some research and found a doctor in California who successfully treats some GWI's. He has sent my peditrician a test kit (test for mycoplasma and other bacteria) and we are going to send it back soon. I hope this will be a answer for my daughter and husband. They both have been through so many invasive tests with no results. Does anyone have any other possible routes I should take in finding a cure for them. The VA can't test them until late December and I don't want to wait that long. I am so scared that my daughter has had this growing inside of her for seven years and noone will be able to stop it from getting worse. I would really appreciate any help you can give me. Tami
Dear Tami,
I don't have any answers,but you might try antidpressant for your daughter and husband if the
test results come inclusvive. I was prescibed them for joint pain,however they helped with the
diahrria, nuasa, migrains,rashes and host of other
problems. You may want to get some information on
fibromyalgia. I rcommend an excellent book you can
get from your local library: Fibromyalgia & Chronic Myofascial Pain Syndrome A survival Manual
by Devin Starlanyl, & Marry Ellen Copeland. You did'nt mention how old your daughter is but at any
child age diahrria can lead to dehydration which can cause death. I would tell Va doctor or bring her into Va,immediately and have them look into enemia at the same time. The VA should have a er or walk in
clinic. The standard test for nuerologic test should, or I would think, be conducted for those ever increasing frequent headaches. The diarhhria
may be the cause, but that diarhhria needs to be stopped so fuilds can be replaced.
If your husband hasn't already applied for his va
benefects he should before December of 2oo0 the cut of time. He also needs to call the gulf
regrestry and get resgristered(please excuse the spelling) He should tell them about his sick daughter and ask how to get help for her and you.
They have program for Gulf vetrans and there famlies, but I not well informed on it. Then he needs to a gulf prototical exam and get a diagnoses for unexplained illness. I hope this helps a little and you get help and answers soon.
Sherry Gulf war Veteran

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