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cholosteotoma/eustacian tube disfunction

cholosteotoma/eustacian tube disfunction

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Posted by Kathy on July 29, 1999 at 23:13:28:

My son is now 11 years old. Since he was 6 months old he has been treated for ear infections/fluid. He had two sets of ventilating tubes put in between the ages of 3 and 5. He has had 5 additional surgeries since he was 7 years old. Cholosteotomas were found bilaterally, causing the distruction of his middle ear bones (osicles), which required bilateral reconstruction of these bones. He currently has a mild to moderate hearing loss bilaterally, depending on frequency. His last surgery in June found a cyst (which was removed) behind his left eardrum. (His tonsils were also removed at this time; his adenoids were removed at age 5.) He complains of "popping and pressure" frequently. His surgeon suspects he has possible scaring in the eustacian tubes, causing them not to function properly--causing pressure to build up in the middle ear. (He has had two eardrum perforations as well.) He takes a nasal spray (flonase) to keep his nasal passages open, but the ear pain/pressure still occurs. We don't know what else to do. After 7 surgeries, we've hoped and prayed that his hearing would be much better than it is. He has to wear a hearing aid in school--he really has a problem hearing if there is a lot of "background noise" in the room. (He is entering 6th grade-and this is hard on a kid!) Does anyone have any suggestions for possible treatments or even another diagnosis that may have been missed? I've started taking him for chiropractic adjustments with the hope that keeping his neck in proper alignment will aid in the eustacian tube operation. PLEASE--ANY COMMENTS OR SUGGESTIONS WILL BE GREATLY APPRECIATED!!! :)

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