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Re: cardiomyopthy, ejection fractions & chest pain, no answers?

Re: cardiomyopthy, ejection fractions & chest pain, no answers?

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Posted by Kate on October 03, 2000 at 21:36:48:

In Reply to: Re: cardiomyopthy, ejection fractions & chest pain, no answers? posted by Karen on September 21, 2000 at 20:53:04:

: : : I am feeling a little alone and lost with a firm grip on the situation, and I don't like it. I can deal with any thing, as long as I have a good idea of what I am dealing with.

: : : I am a happy healthy active single mother of two, with a little history of mild auto=immune dysfunction mostly neuropathy.

: : : Well two years ago I developed shortness of breath and chest pain which got worse and worse until I ended up in the ER the day after Thanksgiving. I didn't want to disrupt the holiday so I drove myself the next morning.

: : : Anyway after a week of drug tests, psychiatrist, pulmonologists and FINALLY a stress Echo I was told I had an ejection fraction of 45 and possible early stage cardiomyopathy. The thing is my symptoms were always with PMS, the way the symptoms were stopped was by stopping my periods. But that was only possible for a few months. Cardiezem CD 120 helped.

: : : Later with a cath my ef was modified to 55, big difference.

: : : This past week it was 44 on the muga scan, my stress test (w/out meds) went up over 200, but other wise was normal.

: : : The doctors say just take more cardiezem. But I want to know what it means. I am between jobs, do I even consider the high stress high paying management job. Or do I opt for broke but happy with the energy to take care of the kids.

: : : No one will tell me what this all means. Dr. says can't give you a prognosis, I would just like a diagnosis?

: : : Also just found out that my insurance has been cancelled retroactively to November 1. My employer had told me I was covered, so now when I asked about cobra it is too late. The insurance company cancelled cause I was not a full time employe.

: : : Any ideas or comments are appreciated.

: : My brother in law is very ill with this terrible disease. He is 49 and was diagnoised 4 years ago. He is being released today from hospital after being there 1 1/2 weeks. Most of the testing could not be done due to the medication he is on. He has not worked in over 3 years. Be very careful, some of the forms of Cardiomyopathy are herititary. It has been a downhill spiral for him. The best layman's link I have found is: it has very good information. His doctors are contacting the Cleveland Clinic. I would check out if you are eligible for disability - SSI. Good Luck and God Bless. An other link more medical is:

: Any history of high blood pressure? Dr's. haven't given you a reason for the myopathy? Maybe you need a different Dr. Any alcohol abuse? How about a second opinion at the Cleveland Clinic? Certainly can't hurt.

Best website going for cardiomyopathy is
It explains everything from disease to social security coverage. The fellow who runs it has cardiomyopathy and he has done a ton of research.
For the emotional end of things I would certainly try
I hope this doesn't infringe on advertising business. How else do we pass on info if we don't name sites?
Good luck.

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