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Re: Recurrent Infections, Lymph node swelling, normal blood tests

Re: Recurrent Infections, Lymph node swelling, normal blood tests

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Posted by Peter on July 06, 2000 at 17:50:49:

In Reply to: Re: Recurrent Infections, Lymph node swelling, normal blood tests posted by Lynn N on April 21, 2000 at 15:10:27:

: : : Does anyone have any thoughts on this. I am constantly sick. I have fevers almost everyday. I sweat profusely at night. I bleed and bruise easily. I cough up stuff all the time. My lymph nodes are enlarged. Once I month I get really sick, spike a fever, have to get antibiotics. My routine blood tests are normal. I have a family history of chronic lymphocytic leukemia, aplastic anemia, palindromic rheumatism, heart disease, diabetes. I don't have diabetes. I do have a heart condition and chronic thyroiditis. All normal with the thyroid though.
: : Audrey,

: : I have found through reading and research on the internet that although your thyroid levels are "normal" you can still have symptoms. I was just diagnosed with Hashimoto's Thyroiditis and have had chronic infections in the past like strep throat, bronchitis,phnemonia, kidney infections and bladder infections. I finally went to the doctor with fatigue, aching muscles and joints, neck pain and swelling glands, something in my throat all the time, numbness in hands and feet, cold, some ear pain and pressure. It took 3 doctors to finally find out I had Hashi's and I still have not been treated. Looking for a dr. to treat me because all my tests come back normal except the antibody test. I have "flareups" all the time, have a good day here and there but then will have many bad days. Sometimes I will run a low grade fever and most of the time my temp is below normal. I never know when it is going to flareup. I have read there are other thyroid tests, such as free T3, free T4, reverse T3 and some others. The only tests I had done for thyroid were TSH and antibody. I have been tested for anemia, adrenal, lymes, plus some other stuff and all came back normal. I need to find a dr. to run some different thyroid tests. I have been told that not all endo. and intern. med. drs. are up on the complexity of the thyroid. Hope you find a specialist that can help. I am still looking. Jane

: Hi,
: I could have almost written the same letter that Jane just wrote. The only differences being that I had thyroid surgery twice due to nodules, the last surgery in '87. I was symptom free for about 10 years until recently. In addition to "all of the above" I am having palpitations and a very rapid heartbeat. Also a lot of swelling. Now I am in the process of all new tests with a new doc. Best wishes to both of you and good luck. I KNOW you feel horrible, and like me you are sick and tired of being sick and tired.
: Lynn

HI: I just had my thyroid removed at John's Hopkins U Hosp in Baltimore - good thyroid group there - very experienced in all areas of thyroid -see Dr Landeson for thyroid issues and Dr Udelsman for surgery. I had Hashimoto's except a LOT of pain in neck with it even after 1 year on 250micrograms per day of synthroid - also I felt lousy all the time. Had the gland removed and in 8 weeks I am a changed person - I now run 5 miles per day and am losing weight -no pain in neck or throat or arms etc. Please do not let docs ignore the fact that an inflammed gland is a bad gland even if your endocrine tests come back in the normal range. I had to leave an endo doc at Washington Hosp Ctr in DC to get to the more enlighteded docs in Baltimore. Dr Udelsman does not normally remote a Hashimoto's thyroid just for pain but he has experienced in a few patients a nearly immediate type of remission of symptoms. I knew in post op that the lousy gland was gone. I think docs really do not appreciate the spectrum of pathology that can be associated with Hashimoto's and you have to go to an experienced doc like DRs Landesman or Udelsman to gain an audience that understands the broad clinical presentations of the disease. Keep on searching for a sympathetic doc.

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