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Re: Idopathic Thrombocytopenia Purpura

Re: Idopathic Thrombocytopenia Purpura

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Posted by Hoofrish Godse on October 30, 2000 at 15:36:54:

In Reply to: Idopathic Thrombocytopenia Purpura posted by Sherri on February 13, 2000 at 20:22:38:

I was diagnosed with ITP in 1999. I have since been on steroid treatment. My count goes up, but as soon as i reduce the dose, it goes back down.

I have had awful side effects of the medication, namely tremendous weight gain, and increase in body hair. In spite of my count being close to normal, i have recently got purpura in the form of stretch marks all over my body, and steadily increasin.

I want to consider taking globulin injections, but want to find a specialist to help.

Can anyone suggest any avenues? Also, if there are any preventive meseares. It is so frustrating to know that this is idiopathic and nobody can tell us anything!

: I was diagnoised with ITP in 1984, had a spleenectomy in 1985 ( it was killing out my platelets),
: and went into remission for 8 years. In 1993 I ended up in the hospital very sick and found that
: my platelets had dropped to 3000. Since that time I've gone through numerous Gamma Globulin
: Treatments. It will raise my platelets for awhile, but they will drop out again. I had an accessory
: spleenectomy in 1997 and I've only had to take 2-3 gamma treatments a year instead
: of 5-9 that I used to take. The doctor says my body is producing antibodies that are killing
: out my platelets. I've inquired about foods or medications that I could take at home, but
: he keeps telling me there is nothing that can be done that will help. Has anyone else had
: a similiar experience or have medical information from their doctors that maybe I could ask
: my doctor about trying? Any help would be appreciated. Even when my platelets are up,
: I still get petechia ( blood spots/blisters).

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