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Re: Pyroderma gangrenosum

Re: Pyroderma gangrenosum

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Posted by r westera on December 04, 2000 at 16:09:46:

In Reply to: Pyroderma gangrenosum posted by Carol on June 30, 1999 at 21:40:24:

I am recovering from an auto-immune disorder which featured the occurence of pyroderma gangrenosum at the extremity (toes) of my right leg. My physician and many specialists had never before seen and were at a loss to explain or treat the disorder. Early symptoms, infection and swelling began late 1999. By spring 2000, I was experiencing great constant pain and wasting of musculature and faced the prospect of death or, at best, the amputation of my right toes/foot/leg as the condition worsened. The ulcerations and swelling worsened with the use of topical and oral anti-biotics. My physicians had never seen anything like it and were generally at a loss to explain its cause or alleviate its symptoms.

Desperate, bed-ridden, and in constant agony, by March 2000 I began treatment with a fine traditional Chinese physician and am now slowly recovering. This disorder was something that he had seen only in China early in his career and, if caught in time, was successfully treated by his father and grandfather using acupuncure and herbs. His grandfather authored a treatise on the subject and its symptoms. Its Chinese name is roughly "wei jing" which refers to the wasting, necrotizing and loss of the extremities.

Traditionally, it is described as 'heat and dampness, descending' and relates to poor circulation and the attendant weakness of the liver, spleen and kidney. If the condition spreads to the spine, it may become untreatable and fatal. Treatment may be long and painful. The presence of infection in the tissues and bone precludes amputation, which merely results in the syndrome recurring at the extremity. Anti-biotics are generally ineffectual and, in addition to use of analgesics and anti-inflammatories, place an added burden on the proper functioning of the liver and kidneys.

I am very grateful to my doctor for saving my life. I am gradually improving at present (December 2000) after 8 to 9 months of treatment. I have regained the use of my leg and recovered most of my right foot and toes. The pain is now manageable and slowly abating. I am now able to walk again and anticipate near-complete recovery.

I would be pleased to address any inquiries.

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