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Re: My IBS Testimonial --ANGIE'S Right

Re: My IBS Testimonial --ANGIE'S Right

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Posted by Harry on August 14, 2000 at 21:50:08:

In Reply to: Re: My IBS Testimonial posted by Angie E on August 14, 2000 at 09:32:29:


: : Hi, Everyone! So, finally after almost a year of checking in on this message board...I finally got the nerve to speak up. My name is Kimberly and I'm 25yrs old. This has probably been one of the most nerve wrecking weeks for me ever.
: : I sincerely believe that I suffer from IBS. I finally got the last portions (I hope) of my labwork done last week. This is the 3rd doctor I've seen, and he is the only one so far that believes that I do have IBS, but still wanted to go through with the labwork, etc. I even had to have a 24-hr urine collection. The only one thing left for me to do is to have a colonscopy I believe. So, far this MD placed me on takng Lotronex. To be quite honest, I think it didn't help me any, but maybe caused me to have more problems. So, I quit taking them.
: : I've been dealing with what I believe is IBS for the past 3 yrs almost, and last night was just one of those nights where I just cried and cried in bed thinking what an emotional, physical, psychological, and spirtual toll it has taken upon me, my husband, and close family members. I can't even imagine telling others around me. I just moved to another state, and you can just imagine the psychological impact that had upon me. A 16hr drive through 3 states was devastating to me. I refused to eat almost 2 days prior to leaving and wouldn't eat a bite the entire trip out. It's horrible. I have a fear of being on a flight cause I have no idea when an attack will come. And airports,let's not even discuss that. Trying to make a flight and Find a restroom? Anytime my husband and I leave the house, as silly as it sounds I try to figure out how long, where we are going, and where are the restrooms. My husband is extremely patient and understanding about all this (and we just got married a few mnths ago)...but you have no idea how humilating it is to have this problem. I'm having trouble sticking to a job, how can someone explain this to an employer without being completely humilated and embarrassed? There ARE some aspects of my life I wish to keep mine, and disscussing bowel movements isn't one of them.
: : It has taken such control of my life it has made me miserable. I miss being like "other" people, and at times I envy them. Horrible of me, I know, but true. I want to be able to travel, go on flights, not have panic attacks, go to a movie, go to a baseball game....I've literally become a prisoner in my own home. It's become such a burden to me, that I'm desperately seeking to work from home (you know, in the privacy of MY bathroom). I can't even being to mention those incidents about "bathrooms"....public ones. People waiting around, you stuck in there...embarrassed and in agony. I once had a bout so bad (lucky I was home that night) that last almost 12 hours. I literally slept on the bathroom floor. I was so drained and tired. Almost blacked-out. That's when I realized, something is wrong. And to be quite honest, all of this didn't happen to me until I was taking Toporol XL for HBP in 1997. I developed severe coilitis, at least that's what the cardiologist told me. He removed me off of it after almost taking for 8 months. That's basically where I can pinpoint it all starting. Not until then, I was perfectably fine. Now, it's where is the next rest area? how long till we are there? are we taking the interstate with 24hr restrooms? do people with RVs know how lucky they are? That's the only way I figure I'll ever be able to travel. I keep telling my husband, we need to hitch a port-a-potty to the truck. I try to have some humor about it, but it really isn't a laughing matter. I've hit an all time low...I watch what I eat, the medicines I take (which by the way I've noticed personally any -mycin antibiotics ruin me), Immodium, pepto, kaeopectate, lomitil have been friends of mine. I got to a point I was taking up to 3 lomitils on an empty stomach before I would even step out of the house. Slowly and gradually, I've gotten to the point that I'm flying "solo"....and was doing OK till about last week. I figured taking the lotronex would help, but about after a week...I began to have the cramping, the constant diarrhea, the gassy sensation and pain, and that horrible sweat or chill you get right before within seconds you know what is going to happen. But what has changed this week is that I have the "feeling" of having to go, and I do...but it almost feels like I'm not done. One day this week, I was in the restroom so frequently, that my bum (sorry to say it) is raw and sensitive. Even when I urinate, it's almost acidic...I can feel it on my bum...cause I'm so tender. This week has been a trying one...I pray that God grants me some peace and gives me the strength to deal with this....At times I feel so hopeless...so tired....so cheated. I feel that at times, I'm holding others back cause of my IBS. Have to plan it around "Kimberly's" need for the restroom. I feel so powerless most of the times. Anyways, sorry about all this....I just had to vent some. I would love to hear from anyone--please. And I promise not to be so lengthy next time :O) Email me if you want to chat: [email protected] or have any suggestions. And I've bookmarked this chat board...Just reading about others makes me feel I have some control over this! God Bless--
: : Kimberly

: Hi Kimberly!
: Believe me...all of us on this board knows how you feel. All of us have had your symptoms in one form or another, so you are not alone. Some people on this board have it worse, some people have it in less severe forms, but we all understand the embarrassment. You don't have to be embarrassed here! There are millions of people just like you with this problem. I personally know what it's like to not eat two days before a trip and top it off with immodium to be sure. I map out the route and pick out the restraunts that have clean restrooms just in case. It's horrible for something to have the kind of control over you. Please read the previous posts on this board, especially the one's from Harry about Fiber. I know fiber sounds scary, because you think it's supposed to make you go. I was hesitant at first, but then I thought, "well, the worse that can happen is diarrhea", and I'm used to that. So I did it. And it worked! The psyllium husk fiber regulates you and makes you form stools. So give it a try. And remember, you are not alone!
: Angie E

Hi Kimberly,
Angie's right we have all been there! And to say it's embarrassing is an an under-statement.There have been instances in all of our lives that because of unpredictable BMs some of these instances rank as probably the lowest times of our lives.
If you have been reading this board you know I post often but every one of us are different and may need something --a little different. After reading your message several times, your problems sort standout.
What I am going to suggest is based on the experiences of having IBS for a many years.
First you immune system has been weakened by the use of antibiotics. You probably have a candida infection or very borline. You can request a 7to 10 day supply of Dilucan from your Doctor. It is very good.I posted a message to TK 4/8--Question for Harry about candida infections--it may be worth reading.
You need to slow down your digestion/BMs and I am a big believer in using fiber. I like and use psyllium husk that is in Metamucil or Equate from Wal Mart but it also comes in capsules that my wife likes. She says the powder bloats her causes pain and nausea but I prefer the powder it seem it works best for me. You can get it in the pure form from a health food store but it does not mix well and I gag every time I use it. I posted a message to Claire on 6/13 about fiber---you may find it worthwhile--all fiber is not the same.I assure you water soluble fiber works.

You as we all are intolerant or sensitive to one or more foods.You have to find out what they are and eliminate them from your diet.Angie and I posted messages to twa on 7/13 "IBS and Food Allergies" both are worth reading. These foods also change and a food may just catch you off guard. Several weeks ago I ate Mexican food and after I left the place --I had an accident about 4 blocks away and I have never had problems with that before----What so bad is the food was not that good.
I know it's awkward discussing Your BMs on the world wide web but as you see it can be helpful and Theraputic.

Another thing you need to replace the nutrients and the friendly bacteria that readily gets
depleted or washed away with watery diarrhea. Calcium, magnesium and potassium are vitally important.I take alfalfa tablets daily and other vitamins and minerals.I eat yogurt at least 4 times a day.
With all this support--NOW aren't you glad you wrote. I have prayed for you since I read your message ---Take Care and God has Blessed you TODAY------Harry


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