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Posted by Pattijean on September 25, 2000 at 15:44:43:

In Reply to: Re: diaphram paralysis(phrenic nerve damage) posted by Pattijean on September 23, 2000 at 16:34:21:

: : hello, Im glad your granddaughter is coming home. From what I understand, Tim is very lucky to not need oxygen. We still have to be careful with him being around sick people. Now that the summer is over, we are home bound alot. the holidays are sad, because they are right during flu season.One of us usually stays home with him and take our other son visiting. We made out ok, they want to do the surgery to tack his diaphram down. They are leaving it up to us, it is a very difficult decision because Tim isn't very sick. We will probably go for it is the spring. Keep us updated!!!P.s how is her arm?

: Hi Lesa, I'm sure it is a hard decision to make about your little boy. The sad thing is these little ones were just fine till birth. Our little one came home today Sat. I went over to video tape her home coming but I didn't stay because I know they need time to adjust the 3 of them. My son is going to get masks I won't go without a mask.She did come home with oxygen and she does have erbs palsy in her arm the arm doesn't seem to bad she is starting to move it but they told the kids not to be to hopeful of the lung. My heart hurts when I see the oxygen on her. I just pray to the Lord for her to not get sick as you said this is an awful time of the year with all the sickness around. I'll pray for Timmy as I am praying for my little one that you will make the right decision. Good luck and God Bless Hi Lesa, Well our little one came home but I see how it is going to be a long winter they said it is very very important she doesn't get sick, The kids are going to be very isolated this winter is that what you did also. She is so very little. I went over Sun. and gave her a feeding but even with a mask I was nervous. Well just keeping you updated on things. Patti

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