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Re: lupus in my daughter

Re: lupus in my daughter

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Posted by Candy Visele on September 20, 2000 at 10:31:14:

In Reply to: lupus in my daughter posted by Bruce on March 21, 2000 at 02:31:16:

:I have SLE and so does my mother. And we believe that my grandmother had it, but was never diagnosed. I went to John Hopkins (Excellent Hospital, top notch dr.'s) in Baltimore, MD and when I was there they told me about a book that they recommend for patients with Lupus. If you email me I will send you the information, I found it very helpful and it discusses the gentics, etc... Also be persistent with the doctors if you think your daughter has Lupus, it took me 5 years to get diagnosed, now that I have been and I am being treated I feel much better. And as man if you think you have Lupus please be persistent, in all the research I have done, it is more prevalent in women, but in men it tends to be more harmful percentage wise. My prayers are with you and your daughter.

: My daughter at two years old had a rash all over her arms, legs, feet, hands, and lower to mid-torso. We had a small biopsy done on her left hand. The pathology diagnosis came back SLE. Does anyone know a great pediatric SLE specialist in LA? The rash went away after to six to eight weeks, but the problems never did. I experienced similar pain in places on my body, but with no rash. I even had myself evaluated psychologically -- so I knew I wasn't transferring my anxiety over her to myself. She is now five and I and her have pains near our kidneys, sinus problems all the time, sensitivity to the sun, aches and pains at various points on our body, tiredness, etc. Her ANA test came back indeterminate at two. I am convinced that an infectious agent, a virus probably, is responsible for SLE. A herpes virus of some sort probably, becuase it has to be a virus that keeps being able to flare up and not be totally eliminted by the body because of its ability to go through latency periods (undetected periods by the body). (Fifty types of herpes vruses affect the animal kingdom, eight of those fifty affect humanity. Our knowledge is so limited in understanding everything out there.)

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