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Re: Tx. of Lyme's disease: Help; frustrated

Re: Tx. of Lyme's disease: Help; frustrated

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Posted by DebbieB. on December 13, 1999 at 19:50:57:

In Reply to: Tx. of Lyme's disease: Help; frustrated posted by Paul Teixeira on December 13, 1999 at 15:56:18:

Paul;Read your post 3x - can't retain due to "fog" . You sound just like me - I tested + on the western blot. Treated with Doxy, Flagyl, and Amoxil. Doxyicycline (spelled it wrong) was the best for me. took away most of my migrating aches & pains. Still have unrelenting fatigue, stiff all over , severe migraine headaches, bouts of crying, and recurrent sore throats, I could go on & on. Sounds like you have lyme to me but I am not a doc. just a lyme pt. who went undiagnosed for 2 yrs. plus do I know what you are gpoing through. I have no hope for a cure _ I am convinced that I will be managing these symptoms for a very long time.. Hang in there - don't give up when the doctors do . I am now off all mediciations due to side effects. This is one big nightmare - you are not loosing your mind. _Debbie B. have been suffering with fatigue, headaches, sore throates, fogginess, some back and neck aches, anxiety & depression, weight gain for apx 5 years. I was healthy as a horse prior to that, I'm 35 now. i have seen many MDs over the past 5 years and diagnosed with depression, hypothyroid disease, allergies, mono. I have been treated for everything, by everyone with no significant change, or relief!!! I function okay, but it's a struggle sometimes, my life is very different b/c of the sx/s; mostly fatigue, headache, and fogginess. I first tested neg. for lymes. i went to a top notch infectious disease MD, who did a series of tests, including western blot, and said i have a very strong positive for LYME's, no doubtin her mind!!! Well, I was treated with doxycycline for apx 3.5 months, 200mg BID. I tolerated it for apx 2 mos but started getting really bad head aches, behind the eyes, realy burning, nausea slightly, and some dizziness. I finally had to stop after about a month of this , unbearable. MD said this could be the bacteria fighting, a good sign, or bad reaction to meds??? Anyhow i stopped, haven't had sore throates, or flu like sx's anymore, but still have fatigue, headaches a little, although not as bad, slowly disappearing after stopping meds for apx 2 weeks. MD sugests I could change to different med, or try IV antibiotics. I don't know what to do?? She dosn't even know if I'm still having Lyme sx's, or sx's from something else. I need advice??? Do I even have it???? Don't recall a tic bite, not the outdoors type!!! Does lymes cause severe, burning headaches behind the eyes, eyes even hurt, or can antibiotic side effects cause this?? Need answers!!! Desperate!!!

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