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Re: **Need Info on Lyme misdiagnosed as M.S.**

Re: **Need Info on Lyme misdiagnosed as M.S.**

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Posted by Lucy on May 13, 2000 at 06:25:23:

In Reply to: Re: **Need Info on Lyme misdiagnosed as M.S.** posted by kate on April 15, 2000 at 01:14:19:

: i've been dx'd with ms for nine years this month, and any responsible neurologist looking at someone presenting with ms symptoms is going to do several tests, not the least of which will be a lyme titre. i know that there are people with lyme's who've had negative titres, and in those cases, i think an ms dx is always going to rely on a combination of diagnostic tools anyway, to include clinical observation; evoked potentials; the all-important mri; and possibly a myelogram.

: hope that's useful.

The reality is, that all too often, neurologists DO NOT do the proper tests to eliminated all other possible diagnoses before the words "multiple sclerosis" comes out of their mouths. This is called "pigeon hole diagnosis". If you fit the age, gender, geographic location, symptoms of MS, and then you have white matter evident on your MRI, expect MS to be considered "possible/probable". In my case, I knew I was never tested for anything beyond MS, as no blood was ever taken from me, nor did I have a lumbar puncture or a LUAT. If you haven't had blood drawn, ask for tests to determine b12 deficiency, heavy metal toxins, thyroid disorders, lyme,... If you have had blood drawn, ask what tests were taken and ask for the results. Just because a blood test for lyme returns negative by CDC standards DOES NOT mean you do not have lyme. Some of the bands are specific to lyme, and that is what you need to be looking for. I hope this has helped.

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