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Re: no dx yet

Re: no dx yet

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Posted by Mary on October 10, 2000 at 09:36:23:

In Reply to: no dx yet posted by Joann on October 09, 2000 at 15:50:25:

: Hi,
: I was just wondering if many of you were told by their neuroligist that ms was ruled out because nothing showed up on your mri or spinal tap? I have been having terrible problems since March 3 rd I was told that I have all of the syptoms of ms by my neuroligist but than when nothing showed up on these test I was told it must be anxiety and dismissed! I was not happy! I made an apointment on my own with a neuro opthamoligist since I was having so much trouble with my eyes. He loked at my mri and said that there was something wrong with the optic nerve. In his report it says there was color blindness in left eye,
: enlargement of left optic nerve sheath,slow dialating left pupil, temporal palor?. This doctor says none of this could be related to ms. I went to a new neuroligist who says that this is optic neurosis. I am not having much trouble with my eyes anymore but all of my other symptoms have remained,weekness,tremors,weird feelings down legs and arms,numbness,fell a few times dur to lack of balance and no coordination, feeling like limbs are asleep my memory is horrible also. I am taking muscle relaxers for my neck and legs. I've been having horrible spasms in the thighs,feet,calfs etc.and my neck is just in a constant spastic state. I know from reading that it is not unusual for ms not to show up with these tests, my concern is since there are drugs to slow the progression a fast dx would really be beneficial. Will a dr dx you without these test showing leasions?
: thanks
: Joann
Joann,Sounds like you have several classic symptons of MS. You need to fine a Dr. who specializes in MS. Check with your local NMSS,if you need a number try 1-800-FIGHT-MS. They will connect youu to your local NMSS. Good luck Mary

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