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Re: What are the short/long term effects of LGMD?

Re: What are the short/long term effects of LGMD?

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Posted by AC on May 10, 2000 at 21:51:15:

In Reply to: Re: What are the short/long term effects of LGMD? posted by Elizabeth on March 17, 2000 at 20:58:58:

: hi there I also have LGMD.....I have had it all my life and I think I actually knew exactly what I had, when I was 13. I also have a lot more problems now. When I was 13 it was much easier to do anything. I can still walk but I fall sometimes pretty bad and really hurt my back for days. I have trouble picking up things from the floor. I have to use my hands to actually lift myself up from a bent over position. It gets really stressful somedays but I try to ignore my disability and try to look at what things I can do and I am good at. My husband helps me also. If we walk a lot I hold his arm for support, if I sit on the floor I get him to pick me up....etc...
: Please do not give up hope or even think that you are going to be bed ridden....I know it is hard to not think that you are going to be bed ridden.......BUT TO TELL YOU THE TRUTH.....DON'T EVER GIVE UP HOPE!!!!! I SURE DON'T!!! Whatever you do...don't ever stop not doing something.... What I mean by that is don't just sit down and not move at all. Try to do some light excersises with your arms and legs. Get your husband to help you if you can't do it yourself. I know sometimes it is hard because believe me I know exactly how you feel. When you have to rely on people to do things for you.

: If you would like to talk please give me your email address and I will talk to you some more about LGMD and other things.....I really hope that I helped at all and I hope that you never give up.

: Take care of yourself.

I'm sorry that it has taken me so long to get back with you but alot has happened to me in the last 2 months. On March 21,2000 I fell out of my wheelchair and fractured my hip which had to be surgically repaired. I was hospitalized for 2 weeks and I am slowly recuperating. I have been much less mobile for the last 6 weeks and have spent much time in bed. As a result I have gained
another 12 pounds and weighed in at 275 pounds at my doctor's appointment last friday. My marriage has also suffered since my husband has a much harder time caring for me now.
I would be interested in corresponding with you. My e-mail address is [email protected]

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