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Trying to trace people with myositis ossificans.

Trying to trace people with myositis ossificans.

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Posted by Jyothi on November 22, 1998 at 20:45:50:

I was diagnosed as suffering from Myositis Ossificans Progressiva 25 years ago. For the
past couple of months I have been trying to trace similarly afflicted people in India. The reason being that
I have managed to find an association in the US which is helping to fund the research on this rare genetic
condition. The results of the research findings have also been very exciting - they have managed to
identify the arm of the chromosome the defective gene lies on. They are very upbeat about the current
research going on too. If anyonne who reads this message knows of someone else with this condition,
please contact me at the earliest as I would be delighted to help in any way I can.

-jyothi


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