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Posted by Dana on October 26, 2000 at 08:38:47:

In Reply to: Kearns-Sayre Syndrome posted by Julie on January 08, 2000 at 08:03:00:

: I am a 29 year old female who suffers from KSS. I have never communicated with anyone else who suffers from the same condition. Please post a message if you are a sufferrer or knows of anyone who is. I am particularly interested in finding out your symptoms and also the long term implications of the disease.

My brother has been diagnosed recently with kss. He is 33. He was in great shape untill he went to the eye doctor to see why he eyes were drooping. They discovered that his pulse rate was 40 beats per minute. They put a pace maker in to help speed up the heart and now his heart isn't pumping right.The dr said it's kss. WE can't find any information on kss, any information you could give would help. thanks.

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