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Re: Spinal Cord Stimulators

Re: Spinal Cord Stimulators

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Posted by Nancy on July 24, 2000 at 23:54:33:

In Reply to: Re: Spinal Cord Stimulators posted by clifford tower on October 06, 1999 at 09:35:21:

: : I have RSD and acute/cronic denervation at my C-5 and C-6 level of my spine. I take 2700mg of Neurotonin a day with some zoloft. The neurotonin is not as effective as it has been, because I have burning sensaytions from my lumbar area to my neck and get stabbing sensations that come and go. I am considering a Spinal cord Stimulator to be inserted to get off the drugs and releive the pain. Any Pros/Cons of such a device would be apprecated. Please E-mail me your responses.
: : V/R Mark

: I also have problems with me spine with T7&T8 they go to my ribs. I also have burning pain in
: my neck. I have weaknes in both legs, no feeling in some toes and fingers.

I have RSD in both arms, basicallly in the elbow areas. I have had 3 surgeries done on my right elbow, none so far on the left. I have been going through Hell for the past almost 6 yrs (next month) and have tried probably about every med and treatment, including accupuncture (that worked very well for awhile), deep tissue massage to try to desensetize, TENS unit which irritated the nerves. I have lived on methadone (100 mgs/day) for the past 3 yrs - my body is so addicted. I also take 6+ darvocet/day, tegretol, valium, and alternate diuretics trying to get rid of some of the fluid retention. Plus more meds at night to try to sleep - I seem to do that rather poorly most nights. I wake frequently from the pain. Even with all the methadone it only takes the edge off the pain. I finally got hooked up to a pain clinic that knows what they are doing, believes I DO have real pain, etc, (like we have all been through) and I will be having the spinal cord stimulator implant in probably the next 4-6 weeks and I cannot wait. I had the trial one put in for a week and what a miracle!!!! My pain level went from 8-9 down to about 3-4 and after 6 yrs, I can live with that. It worked so well I actually started detoxing about 3 times during that week as I did not hurt to remind me to take my meds every 3 hrs. Plus, my new ortho Dr - who realizes it is job related (I'm in the middle of a workmans comp suit) took me off work and just the not beating both my arms to death everyday with constant computer and writing, mouse, 10-key, etc has also helped immensely. I know not everyone is a good candidate for the SCS, they will not implant them in just anyone. You have to go through psychological counseling, testing and they don't just rush into it - it is a long process, at least where I am treated. But, that is good, it makes you really think about if you want it. I will have to be off work 2- 4 mos after the implant, in a soft cervical collar for 2 mos until my body grows around everything to anchor it in place. Basically it sounds like you can do about nothing for the 1st couple of mos, but if I can get relief like I did with the trial, it will be worth a couple of months of inconvenience. From my experience, I would definately advise you to check into it - hopefully you have good insurance that will cover it because it is not an inexpensive procedure. I will even have to spend at least one night in the hospital after the implant - it's not a minor, outpatient thing. Good luck. Hopefully your Dr will at least let you do the trial to see if you are a good candidate.

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