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Posted by Lory on October 22, 2000 at 10:24:04:

In Reply to: Re: Use of botilinum toxin for dystonia posted by Bruce on October 17, 2000 at 21:40:45:

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: : That is good news Bruce. I am having STN surgery in the spring I think . My nuerologist thinks that is a good idea for me. Can you tell me about Bontriumn (sp),Toxin injections into neck muscles for spasms pain and dystonia? My doctor thinks that will help me with my dystonia. Have you ever heard of that? It is a form of botolism (sp). Any help would be greatly appreciated.

: : : : Can anyone tell me the hospitals nearIndiana, such as in Ohio, Illinois, Kentucky that perform the DBS/STN surgery and, if possible, their phone number? I would appreciate it Bruce

: : : Just cancel my question, because thanks to Dr. Lieberman's Q and A, I have located a neurosurgeon in Indianapolis and I was even given a choice of which hospital to have the surgery. Their is a good hospital close to where I live and I may be able to have the surgery in November. How about that for good news. Bruce

: Eileen, Your question is getting close to my former job as a hospital microbiologist, The toxin you refered is the same toxin produced by the bacteria that causes botulisim, but the amount you would be injected would be a very small amount and their would not be any danger of contracting botulisim. Because dystonia is caused by sustained contractions or spasmodic contractions the botulinum toxin is injected into the muscle to relax the muscle. It works by weakening the muscle by blocking nerve impulses transmitted from the nerve endings of the muscle.The toxin does not treat the cause of the dystonia, but provides temporary symptomatic relief. After the injection, the muscle cannot contract as strongly as before. It's an approved treatment that is commonly used in a variety of conditions such as muscle spasms on the face or eye and has even been injected into the larynx to improve speech. It should make you feel a lot better. Take care. Bruce
A lifeguard where I swim has familial dystonia, which was causing her intense pain in her neck. She had a series of botox done, felt ever so much better, and is having a few more done in some stubborn areas -- but she can work again without the excrutiating pain and discomfort she formerly had. Hope this helps. Is there a dystonia message board that you know of? She's like to find one and hasn't had success so far, and there is no local support group here in Eugene, Oregon. Lory

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