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Re: Trisomy18

Re: Trisomy18

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Posted by Karen on April 30, 2000 at 01:23:59:

In Reply to: Trisomy18 posted by Debra Bentley on December 10, 1999 at 20:04:42:

: Deb- My son Nicholas was born with Triisomy 18. This past Sunday we celebrated his 2nd birthday!!
He is doing GREAT. When he was born we had no idea anything was wrong. When we took him in for
his 2 week check up he was extremely dehydrated and had lost almost a whole pound. We were sent
to the hospital for 5 days and at this time no one knew what it was. From there our nightmare began.
I was taking him to the doctors office at least four times a week. I didn't know what was wrong with him.
He was crying all day, every day. It started with constant urinary tract infections, fevers, vomiting and
not eating. He was hospitalized 2 more time before we had our appt. with a genetics doctor. I was
crushed we they told me what he has. How could this happen? I have two older sons who have never had
as much as a common cold. My poor sweet angel was suffering constantly and there was nothing I
could do for him.My Dr. suggested a program that is free through your school district called ECI
(Early Chidhood Intervention). I owe this program so much for all they have done for our family. They come
to your home or daycare up to four times a month and work with your child. Nicholas could't even sit
up by himself untill he was a year old. They showed me how to work with him and build his muscles.

Today he is running, Trying to talk and showing very little signs of his disorder. Have faith and do alot of praying
and get all the support you can. Get information from your school dist. about this program. They have
several programs the first is 0-3 years of age. Good Luck to you and your little angel.
Karen Shortino-Carrollton, Tx

: Deb Bentley
: 60 Cook Dr D1
: Bad Axe, MI 48413

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