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Posted by Kim on July 27, 2000 at 16:13:07:

In Reply to: Re: TTP posted by erick on July 23, 2000 at 00:07:18:

:Lynne, my mother was diagnosed with TTP Nov. 1998, by the time the problem became evident Mom's platlet count was down to 11,000. Mom did have complete renal failure, her blood sugar sky rocketed, her lungs were filling with blood - anything that could go wrong did. Mom was put on full life support 5 or 6 days after diagnosis. At one point, her platlet count was down to 2,000. She was transferred out of two hospitals and finally was stabilized and began improving once she was admitted to Emory University Hospital in Atlanta. Mom went through many many plasma pheresis' - she was undergoing the peresis' twice a day for about 2 1/2 weeks. She was on life support for approx 30 days and remained in the hospital for weeks after coming off the life support - in order, to get her platlets back up and out of the danger area. Mom also turned purple from head to toe, especially her toes. She bruised easily and she did swell quite a bit. At one point, she was so swollen the fluid began seeping through numerous areas of her body. I would like to say, that Mom is doing very well now. She had to relearn how to walk and it took her quite a while to be able to speak to us again - we are not sure if that was a side effect of the tubes breathing for her or if it was a side effect of the TTP itself. I also want you to know that my Mom's TTP was induced by a medication, which is "Ticlid" - some form of blood thinner which is to help prevent strokes. TTP is a known side effect of the medication, but this information was not relayed to my Mom by any doctor or pharmacist - it was three weeks into taking the medication that she was diagnosed with TTP. I have much more information that I can share with you and I have several e-mail friends that either have experienced TTP or have a loved one that has TTP and I would be more than happy to share these e-mail addresses with you. You can e-mail me at [email protected] If I don't hear from you, my thoughts and prayers will be with your father-in-law and your entire family. I certainly wish you all the best.

: Hi, My father-in-law has just been diagnosed with TTP & I was really interested to read of the treatments in your letters. Did any of you have complete renal failure? His temperature is 103.6, white cell count 165,000 and platelets down to 17,000. He is on a respirator & they started him on steroids yesterday. They have done dialysis today and a platelet exhange. He is also purple from head to toe. Does this sound like TTP?? How long was recovery? Can you recommend any good websites? Thanks in advance.

: Lynn, my name is Erick I have TTP also and if you would like to email where we can talk further please feel free to do so at [email protected]

: thanks erick

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