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Re: death from thrombocytopenia purpura 12 days after delivery

Re: death from thrombocytopenia purpura 12 days after delivery

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Posted by Phil Lacke on October 30, 2000 at 11:20:11:

In Reply to: Re: death from thrombocytopenia purpura 12 days after delivery posted by Chris on August 14, 2000 at 21:53:55:

: : my sister nancy, died may 17. 1990 to what they are calling thrombocytopenia purpura. she had a normal 2nd pregnancy without complications.
: : she began to have pain in her legs and difficulty breathing and had an emergency c-section performed at 8 1/2 months.
: : after her c-section she began to develop shortness of breath, decreased urine output,
: : decreased vission and bruising. she had her son in wisconsin at a small hospital, immediately
: : they transferred her to a larger university hospital in wisconsin. she delivered her baby on 5/5/90
: : and celebrated her 25 th bday on 5/12/90 she died from a clot in the lungs on 5/17/90. she and i were best friends.
: : i guess the dr's hadnt dealt with this type of problem before because they didnt know what was going on.
: : i am a nurse now and am more knowledgeable about the bodys process. i just hope that this letter gets to be
: : read by many. i feel for the other families who have been throught his awful disease or who are
: : going through this now. my sister was one week away from graduating from the university of wausa
: : with a bachelors degree in communications. she was also in the army reserves. the sad thing is she kleft
: : behind 2 beautiful boys who miss her soooooo much. (her baby by the way is fine, no problems at all)
: : thank you for listening,

: : lisa kimzey
: : california

: Lisa - I'm so sorry to for your loss and especially to her 2 boys. Its such a shame that so few Drs. know how to recognize the symptoms of TTP, if they did they might be able to stop it before it becomes life threatening. I saw my Dr. 7 times before they finally called in a hematologist who just happened to recognize the symptoms, by that time I had had a stroke and was hours from death, luckily I responded to the treatment. I was also at a hospital where they could not treat me and had to transport me to a bigger hospital. God Bless You and your family and thank you for sharing your story.

Lisa: I read your message because I placed a message out there trying desperately to find out more about this desease which has afflicted my brothers wife. She was sick Friday 10/27/00 and had some bloodwork done that day. It appeared normal. By the following day 10/28/00 she was near death in the ICU at the Marshfield Clinic in Wausau, WI. My brother and his wife live in Edgar a very small town near Wausau.
Where was the small hospital in WI. and did she transfer to Madison?
I am so sorry that you are without your sister. I can only begin to feel the pain that you have and the helplessness that accompanies a diagnosis of some obscure unknown desease.
Take care:Phil Lacke

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