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Re: Trisomy18 - it's not always fatal in the first year

Re: Trisomy18 - it's not always fatal in the first year

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Posted by KELLY K MCGREGOR on November 09, 2000 at 09:55:57:

In Reply to: Re: Trisomy18 posted by Trish Crawford on July 10, 2000 at 14:28:32:

I am so upset that you would think of aborting just because the child has been diagnosed with
Trisomy 18. I know many children living with it now. All range in age from 3 weeks to 24
years old. Our oldest just recently passed in her 40's. Yes, it's hard! But your children can
survive to be good ages. Wouldn't you rather have them for 1 year, 5 years, even 20 years,
rather than never lay eyes on their beautiful faces or touch their delicate hands????

I did not get my diagnosis until Sloane was born. She's now 2 and doing wonderful. I never
knew any special children, but now I can't imagine my life without them!!! I pray God gives me
more because I know I have the strenght to survive and I hope that you all do too!!!!

: I have just today learned that my niece's unborn baby has it. All medical information available on this syndrome is totally discouraging. My only prayer for my niece is that her baby be miscarried or she have the strength to abort so she won't have to carry to full term. It is a genetic, chromosonal disorder that is fatal. I wish I could give you better news. My prayers to her and her family.

: : Need information on Trisomy 18. Please help us get information on this disorder. Daughter was just told that her baby will be born with it.
: : And that the baby will not live past a year.

: : Any info would be helpful

: : Thanks

: : Deb Bentley
: : 60 Cook Dr D1
: : Bad Axe, MI 48413

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