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| Rare Disorders Message Board Rare Disorders Message Board premature ageing in children - nikki bausman 19:56:19 12/16/00
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microdisectomy with plating - rockfinder anna 19:02:41 12/15/00
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polycythemia vera ruba - DEE 20:30:54 12/12/00
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Happy Appearance Syndrome - Louis Fransen 16:57:17 12/01/00
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cronic infeccion in bone - sylvia 15:36:56 12/01/00
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High iron level in the liver - Yu Liu 14:00:01 11/29/00
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PFAPA, Periodic Fever Syndrome, Recurring Fevers - Lana 19:24:27 11/28/00
(3)
sun allergy - Barbara Eva 12:52:32 11/26/00
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body temperature regulation - andy parker 07:26:11 11/23/00
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My sister has a condition that is unknown Please help - Darren Hall 04:52:40 11/23/00
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fvleiden - kathie s 18:07:26 11/21/00
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Carotidynia-Pulsating Carotid Artery..anyone have this? - Steph 15:09:19 11/21/00
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interstitial scistitis - Jeanne 18:25:03 11/17/00
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IDIOPATHIC THROMBOCYTOPENIA PURPURA - jc 23:01:01 11/15/00
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nasal sores - Annette 14:20:05 11/15/00
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Idiopathic autosensitization thrombotic purpura syndrome? Help - Lee 11:32:27 11/12/00
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Hyperhidrosis - Kiwi 13:18:09 11/10/00
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PFAPA syndrome - Donna Cameron 13:19:50 11/09/00
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TTP - Diane 21:36:12 11/05/00
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transversemylitis - annette 11:31:35 11/05/00
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Hyperostosis Frontal Interna - Liz 07:31:42 11/04/00
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TTP Thrombotic Thrombocytopenic Purpura - June 08:40:03 11/03/00
(3)
Optical Nerve Disorder in 4 year old - Anil Sindhwani 07:50:42 11/03/00
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Choroid plexus cyst diagnosed in pregnancy - Sabina 01:33:53 11/03/00
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Genital sensation - Barbara Smith 20:22:42 11/02/00
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TTP Thrombotic thrombocytopenic purpura - Phil Lacke 13:15:33 10/30/00
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TTP Thrombotic thrombocytopenic purpura - Phil Lacke 10:37:20 10/30/00
(2)
muscle detached from rib... PLEASE HELP! - tarra cunningham 09:54:30 10/29/00
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endocrine imbalances - Jac 01:09:26 10/29/00
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APL Syndrome - Larry Rowinsky 12:15:22 10/28/00
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RARE CASE CALLED 'MORPHIA". - EDWINA ALLEN 23:24:52 10/20/00
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Pheochromocytoma - adrenal gland tumor - Robyn 18:51:29 10/19/00
(3)
Polymylagia rheumatica - Richard 17:54:17 10/18/00
(1)
Freeman Sheldon syndrome - Fiona 05:22:33 10/16/00
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persistant nauseau - Sylvia 21:13:22 10/15/00
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Mystery skin reaction for 15 years, doctors no nothing, please help!!! - megan 21:40:52 10/14/00
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Iris Cysts - Kasia 15:11:40 10/13/00
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Any cunning linguist/medics? - susi 19:51:49 10/12/00
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Lipase.. Elevation... - Rita 03:14:05 10/12/00
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Low Red Blood Cells,, Low Hemcrat, Low Hemgoblin - Rita 03:08:43 10/12/00
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PORPHYRIA - does anyone know anyone with it?? - Jessica 17:32:22 10/11/00
(1)
ELEVATED GAMMA GLUTAMYL TRANSPEPTIDASE - ANN 17:10:54 10/11/00
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ostioitis - Dale Langley 10:23:33 10/10/00
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unkown name, but like a PREGNANCY-INDUCED ADDISONS DISEASE (lack of cortisone,severe rash, etc.) - GERI 23:42:04 10/09/00
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Pyruvate kinase deficiency haemolytic anaemia - linda mcneely 18:18:57 10/09/00
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burning/tingling sensations in head,ears,and arms - bill 00:37:28 10/09/00
(1)
TTP Is it hereditary? - Deanna Slate 21:04:47 10/07/00
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Arachnoid cyst - Zvone 19:49:33 10/05/00
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SUCCINIC SEMIALDEHYDE DEHYDROGENASE DEFICIENCY - Shabir Elahi 18:15:22 9/28/00
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adrenocortical cancer - Ann 15:29:11 9/27/00
(1)
Unknown stomach troubles - Jill 13:31:58 9/24/00
(1)
Progressive supernuclear palsy - Dave Austin 10:01:11 9/23/00
(1)
Body Odor (fish odor syndrome or TMAU?) - Jay 20:42:12 9/21/00
(1)
Lichen sclerosa - Catt 08:49:53 9/20/00
(0)
CAPILLARY LEAKAGE SYNDROME( GOODSON'S DISEASE) - JUNE CLARKE 14:59:08 9/18/00
(1)
Perodic Fever syndrome PFAPA - Denise 20:50:30 9/13/00
(6)
Cushions Desease - Peggy 20:39:19 9/09/00
(3)
Linear IgA - Amanda Hogan 17:32:43 9/09/00
(0)
Sezarzy Syndrome?? This is Rare! - J.T.N. 08:43:21 9/02/00
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pregnancy with tube through bile duct - Kelly 12:53:27 9/01/00
(1)
Tetrasomy x and Pentasomy X - cyndi bradley 22:52:27 8/28/00
(1)
white tongue - ralph 10:04:43 8/28/00
(0)
Is Polycythemia a hereditary condition? - Cathy 15:14:41 8/24/00
(2)
plaque-like mucinosis ( reticular erythematous mucinosis) - Tammy MN 20:57:21 8/22/00
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Recurrent Fevers in Children - Wendy 10:50:31 8/21/00
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HEMECRANIA CONTINUM - LIZ DAMARO 16:10:37 8/17/00
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Cowden's Disease - Tammy 14:34:57 8/16/00
(2)
Pernicious Anemia - Roberta 21:43:31 8/15/00
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white sores on tongue - Paul 19:05:40 8/15/00
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Re: death from thrombocytopenia purpura 12 days after delivery - Chris 21:53:55 8/14/00
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death from thrombocytopenia purpura 12 days after delivery - lisa kimzey 14:19:08 8/14/00
(0)
TTP - Wise to Get Pregnant? - Chris 23:55:34 8/11/00
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Stomach Polyps - Tammy 13:43:30 8/11/00
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Polycythaemia - i want to learn more about it. - Alison 00:11:05 8/11/00
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Looking for a Psychiatrist who educated with Biopolar/Manic/Drepresion - Yvonne Norton 03:16:07 8/09/00
(1)
Lymphedema - Beth 19:21:52 8/04/00
(1)
polycythemia - Brenda 14:51:52 8/04/00
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Ryder's syndrome? - anon 18:34:29 8/02/00
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????? nuero disease Myastenia gravis, or MS or brain ????? - DONNA TRAYLOR 23:39:51 7/28/00
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What can I do? - Jaime D. 23:12:12 7/28/00
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Why has this happened to me? - Lynda 14:30:46 7/28/00
(4)
Goodpastures syndrome - Tami 13:22:58 7/28/00
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Rocky Mountain Spotted Fever - Jeanna 20:35:18 7/27/00
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Nonfunctioning glands - Toni 13:23:04 7/27/00
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Post liver transplant complications & heart and respiratory disorder - Grace 16:30:43 7/23/00
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Undiagnosed condition - Grace 16:29:07 7/23/00
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Skin Eruptions - P Holmes 21:39:34 7/21/00
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TTP - Lynne 18:34:59 7/21/00
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- Re: TTP - Chris 12:39:06 8/10/00
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- Re: TTP - erick 00:07:18 7/23/00
(1)
cerebellar syndrome (degeneration) - johnboy 18:17:38 7/21/00
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Support eGroups for People affected by Rare Disorders - David 05:02:10 7/19/00
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polycythemia vera and pleural effuison - pam hunter 07:28:30 7/17/00
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Sinus pain, effects of pressure - Vicki 23:44:41 7/16/00
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TRANSVERSEMYLITIS~ Any help appreciated!!! - Trish 18:10:34 7/04/00
(2)
Unusual Swelling - Martha East 12:47:52 7/02/00
(1)
Denys-Drash Syndrome - Maureen 23:44:30 7/01/00
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Thrombotic Thrombocytopenic Purpura/TTP - Carmen Roby 12:16:02 6/27/00
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Arachnoid Cyst - Carolyn 14:05:44 6/18/00
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polycythaemia-need specialist - AARON 22:56:22 6/16/00
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GRANULOMA ANNULARE - DIANNA CLAIR 18:44:50 6/15/00
(4)
Pseudoxanthoma elasticum PXE info please . - cazzz 21:41:56 6/14/00
(1)
reoccuring "rash" or poss. brusing dr's have no ideas - Julie 07:01:56 6/14/00
(1)
withdrawel from effexor-xr - nancy 09:31:14 6/12/00
(2)
unknown disorder - kim kerby 19:49:45 6/10/00
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polycythemia and hydrea - tommi 00:25:36 6/10/00
(1)
angiolipoma - bill 22:24:26 6/09/00
(3)
IgA deficency - Jennifer 12:56:14 6/07/00
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Attn: all ttp people and all others, 'On pred and losing weight' - cherw 00:52:16 6/07/00
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Adhesives - Rachel 20:53:57 6/06/00
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Ollier's Disease - Claire 11:42:12 6/06/00
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muliple hemangioma of the spine/organs - kathleen b. 09:55:08 6/02/00
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multiple hemangioma of the spine organs - kathleen b. 09:53:48 6/01/00
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help!!!!!!!!!!!!!!!!!!! - wendy candiano 08:40:30 5/29/00
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Dermatomyositis,Sicca Syndrome, Rheumatoid Arthritis - christy 11:49:00 5/28/00
(1)
TTP on the internet. - Dale 23:23:59 5/26/00
(1)
NEED RARE BLOOD IN ASIA- OPERATION- HELP! - Kazuko Osawawa 08:50:32 5/26/00
(0)
when i look out of my left eye there is a dark oval spot that appears everywhere I look. It has been this way for at least two days. - jeremy 11:31:53 5/25/00
(2)
MYRLOFIBROSIS - GENE 11:30:39 5/25/00
(0)
Idiopathic Pulmonary Fibrosis - Debbie 16:14:49 5/16/00
(1)
vomitting, tightness in chest - jj 22:18:01 5/13/00
(1)
Linear IgA of Childhood - Stephanie Sams 10:21:51 5/12/00
(0)
TTP - Diane 18:19:19 5/06/00
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- Re: TTP - Christine Von raesfeld 16:38:55 6/07/00
(4)
- Re: TTP - diane 21:40:35 6/19/00
(2)
- Re: TTP - Brian 23:40:47 8/08/00
(0)
polycythemia vera - Rick T. 19:52:48 5/04/00
(5)
Searching for people with Hartnup Disorder - Linda Cain 06:40:26 4/30/00
(1)
Big Adenoids - Skye 16:36:23 4/28/00
(1)
Reaction to fluorescent lights and itching - Kathy 13:28:18 4/24/00
(0)
Ear Getting Too Large - Ann 22:20:27 4/21/00
(0)
SYNDROME OF SNEDDON - ELENA 10:04:26 4/21/00
(0)
Rare dry skin disorder - dkronnick 21:32:13 4/15/00
(1)
TTP in Pregnancy - Susan Hansen 17:03:27 4/15/00
(1)
Thrombotic Thrombocytopenic Purpura / TTP - Tarika Blizzard 01:00:27 4/13/00
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lumps on forehead - matt 04:18:07 4/12/00
(1)
ttp - tanisha 19:33:19 4/09/00
(2)
- Re: ttp - cherw 23:01:31 4/09/00
(1)
acromegaly? - marie 16:46:46 4/09/00
(0)
SWEET'S SYNDROME - Maree 08:21:30 3/30/00
(0)
Xeroderma Pigmentusem - Marilyn Mitchell 20:03:24 3/27/00
(1)
prednisone - BILL LIZ 10:33:40 3/22/00
(1)
thrombocytopenia - Kathy 20:15:34 3/21/00
(4)
irritation feeling in chest - Wanda 07:19:01 3/20/00
(2)
knee pain meniscus - Gage 21:22:46 3/19/00
(0)
Need Medical Help - Shannon Coke 00:46:28 3/19/00
(2)
Bullous Pemphigoid - Liz 23:00:15 3/13/00
(7)
Sweet Syndrome - Jerry 16:31:15 3/13/00
(5)
looking for cause of death of my mom - Lauren 23:19:24 3/12/00
(3)
mirror imaging disorder - kimberle routt 21:56:50 3/10/00
(0)
ttp response to Valarie!!!! - lois 13:28:41 3/09/00
(0)
Help me fight TTP, my daughter died at 12 - Valarie Kincaid 13:04:19 3/09/00
(7)
ttp response to Melodee!!!!!!!!!!! - Lois 19:11:17 3/08/00
(0)
unknown disorder - kristy 16:51:40 3/03/00
(0)
rare genectic disease - Donna 16:20:25 3/01/00
(1)
TTP RESPONSE - Lois 00:35:13 3/01/00
(0)
Persistent Nauseau - Michael Hughes 11:36:51 2/29/00
(2)
Incontinentia Pigmenti - Kerry 10:22:28 2/29/00
(5)
Persistent Coated Tongue - LYNN 09:02:38 2/29/00
(4)
granular substance - Ann 14:12:02 2/27/00
(0)
rare sleeping syndromes - kb 15:18:49 2/26/00
(3)
Please help!!!!!!!!!! - m 11:52:48 2/24/00
(3)
CHP and HC - Carrie 04:30:09 2/22/00
(4)
red rash on palms - John Kincaide 21:17:32 2/20/00
(0)
Rare congenital heart disease - Luba 04:28:19 2/19/00
(3)
Floppy Child - Cathy 13:42:19 2/15/00
(0)
semantic pragmatic disorder - monika bhatia 20:43:39 2/13/00
(1)
13q+ and hypothyroid - Jose 21:20:56 2/11/00
(0)
meningiomer - krs 19:50:22 2/10/00
(2)
Von Willibrand's - StephenP 11:29:43 2/10/00
(2)
polycythemia - pat g. 15:52:32 2/07/00
(5)
Leaking Capillary Syndrome(Goodson's Disease) - A.Suggs 20:25:21 2/06/00
(1)
Intussusception - Denise 01:33:15 2/05/00
(0)
MY DICK, i need some advice im a teenager - MR S 18:29:14 2/03/00
(3)
Basal Cell Degeneration - Judith Pollack 14:39:48 2/02/00
(0)
THROMBOTI THROMBOCYTOPENIC PURPURA - DOMENIC 15:12:03 2/01/00
(1)
ttp.response, - LOIS 20:54:56 1/31/00
(0)
ttp - Tallada 20:05:28 1/31/00
(1)
Please help my dad - Julie 17:55:34 1/28/00
(5)
tingling toes & swelling ankles..tender skin in lower leg - CINDY 16:28:58 1/24/00
(3)
RSV - Tricia 16:23:48 1/21/00
(0)
Semen Allergy? - Matoaka 17:46:36 1/20/00
(7)
tingle right arm hand shoulder - Roger M Singletary 00:30:55 1/18/00
(2)
Re: Polymylagia - Harry 19:57:34 1/18/00
(2)
Polymylagia - Marci 11:21:23 1/17/00
(2)
IgA & IgG immune deficency - kristi 02:54:03 1/17/00
(0)
ttp - Lois 19:48:47 1/16/00
(14)
ankle wounds caused by Hydrea - a posniak 12:17:15 1/16/00
(3)
E.B. - art 05:12:20 1/15/00
(2)
Severe gastro attacks...why? Please help! - Jenna 15:25:30 1/12/00
(6)
ELEVATED SEROTONIN - Debbie 16:25:22 1/04/00
(7)
atrophic papulosis of Degos - Judith 06:45:51 1/03/00
(2)
Sarcoidosis - Russ T 22:39:34 1/02/00
(2)
an urgent plea for help-re:HICCUPS - edna aphek 04:49:06 1/01/00
(4)
Systemic mast cell disease and or multiple angiolipoma - Brian Maskell 23:30:54 12/30/99
(8)
LIPODYSTROPHY - Isa 09:42:48 12/30/99
(2)
Undiagnosed food metabolism condition (long) - jdwilliams 22:08:50 12/23/99
(12)
Perthe's Disease - Kim 11:12:32 12/20/99
(0)
Rheumatoid Athritis - Patricia Mooney 21:45:57 12/19/99
(1)
Unhealing Bones - Cathy Heilman 16:10:44 12/18/99
(0)
Macro Phallus Syndrome - Janet 01:09:18 12/17/99
(0)
Idiopathic Thrombocytopenia Purpura - Diane Robertson 15:11:29 12/16/99
(6)
PORPHYRIA - Betty 22:20:31 12/15/99
(4)
Please help my dad - Amber 18:27:34 12/14/99
(2)
hyperandrogenism - Beverly 19:16:48 12/13/99
(3)
Trisomy18 - Debra Bentley 20:04:42 12/10/99
(7)
wilson's disease? - Diane 23:12:12 12/08/99
(2)
Breath Holders Syndrome - G. Stevens 20:30:00 12/08/99
(0)
anitbodies to medications - Gail 22:40:22 12/05/99
(0)
Brain leisions - Dee 08:26:55 11/23/99
(9)
Amyloidosis - Razzle 02:47:28 11/23/99
(0)
NEW NOTICE >> - Rare Disorders Message Board Moderator 08:59:45 11/18/99
(0)
Olivopontocerebellar Atrophy - Kat 15:09:41 11/17/99
(0)
xanthelasma - Ellen MacKinnon 10:55:23 11/17/99
(1)
Cortical Basal Degeneration - Edith Mountain 00:09:55 11/16/99
(2)
Thrombotic Thrombocytopenic Purpura - Carla 20:51:45 11/15/99
(36)
Excessive androgens in women and their effects - andrew zubriczky 11:50:31 11/11/99
(1)
pernicious anemia - lee moore 18:37:07 11/09/99
(2)
malignant atrophic papulosis of Degos - Judith Calder 11:33:26 11/05/99
(3)
cushions syndrome - Dulci 09:47:40 11/05/99
(1)
Spinal Arachnoid Cyst - Melissa 20:57:28 11/02/99
(5)
Re: PARAPSORIASIS- Pre Mycotic Erruptions - Judith Calder 11:16:12 11/05/99
(1)
C. Thomas Wild - ADHD Autobiography - Rare Food Additive Sensitivity Reported - No name 21:21:27 10/31/99
(2)
blue skin - MaryAnn 19:23:05 10/26/99
(1)
giant cell tumor with pulmonary metastases - CarolynB 11:33:19 10/22/99
(1)
ANTIPHOSPHOLIPID ANTIBODY SYNDROME - Ashley 17:24:07 10/21/99
(9)
GRANULOMA ANNULARE FOR 13 YEARS - CAROLYN 12:04:48 10/15/99
(22)
vinergar problem - sandra luk 20:40:59 10/14/99
(3)
Central Nervous System Degenerative Disease, HELP - Deborah 14:07:47 10/11/99
(3)
Linear Iga Disease - Lori Bolanos 12:56:34 10/11/99
(2)
men 1 pregnancy - Cheryl 20:51:47 10/03/99
(1)
Legg Calves Perthes Disease - Shirley Thomas 20:51:14 10/03/99
(6)
TTP - Annette Argo 12:57:04 10/03/99
(9)
- Re: TTP - Christina 15:38:07 2/03/00
(3)
- Re: TTP - Christine Von Raesfeld 17:10:23 6/07/00
(2)
- Re: TTP - Carol Marcotte 05:48:49 12/22/00
(0)
- Re: TTP - Yvette 23:02:11 8/25/00
(0)
- Re: TTP - Lucette 15:16:52 11/23/99
(0)
- Re: TTP - Mary Horton 22:13:19 11/04/99
(0)
human parvovirus - kristin 16:10:46 10/02/99
(5)
polycythemia vera - Syd Sayers 16:53:11 10/01/99
(12)
polyarthritis nodosa - mjmiddlebrook 16:43:22 9/30/99
(0)
Blood disorder Cronic DVT's - Kevin 03:27:52 9/28/99
(9)
SYRINX of spinal cord - DEE DEE 22:43:27 9/25/99
(5)
Verdnig-Hoffman Desease - Oleg Moysov 14:48:06 9/19/99
(2)
Mastocytosis - Debbie S 20:06:03 9/18/99
(2)
sweet's syndrome - Cathey Attwood 12:54:59 9/18/99
(11)
Tarlov Cyst - In Pain 00:28:55 9/18/99
(4)
Welcome to the Rare Disorders Message Board - Webmaster 13:31:17 11/28/98
(7)
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