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Re: anyone with rsd, that could talk to me?

Re: anyone with rsd, that could talk to me?

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Posted by Tammy D on January 11, 2000 at 20:38:34:

In Reply to: Re: anyone with rsd, that could talk to me? posted by Pat russo on January 09, 2000 at 04:02:30:

: : : please will someone with rsd/crps talk to me i talk to my wife but she can understand so much and i really would like to talk to anyone with this i have it in both legs myright ribs and my right arm i am on durogesic patches but they are like taking asprin for a migrain please answer or e mail me
: : : I also suffer from rsd in my right leg (mainly my knee), my left arm, from my shoulder to my fingertips, and starting in my right elbow...the pain is anything from a burning, tearing, searing pain to throbbing pain in my entire limb....I was never able to get my ex-husband to understand what I was going
through, and most of the time he didn't seem to believe what kind of pain I was in...he also was constantly yelling at me for doing things that would aggrevate my condition ...I tried to explain to him, that if I stopped doing things I enjoyed, because of the pain, then I might just as well end it, because I was
determined not to let it stop me...the guy I have been seeing for the past 2 and 1/2 years has no idea of what I am going through, and I have no intention of ever telling him. He knows that my leg and arm hurt sometimes, but when it is really bad, I just stay away and make excuses about being busy. Be
very thankful that you have someone you can talk to, even though she may not understand rsd fully, I'm sure she cares and is willing to help you deal with are SO lucky!!!!! Have faith and if helps, I always remind myself to think of others who are worse off than I am...
Depression is a big part of RSD...I was told by my orthopedic surgeon and my pain clinic Dr, that RSD sends out the same endorphins for the pain, that have been found to also be responsible for depression...I know sometimes it seems overwhelming, and you don't think anyone else understands, but
hold on to your wife and thank her for being supportive.....That's the most you can ask for, and some of us don't even have that...
Good luck and I guess the most important advise I could ever give anyone suffering from this disease, (after 6 years of dealing with it) is pace yourself...learn the warning signals, and when the pain starts to rear up, start your pain management THEN...don't wait until it is unbearable, as my Dr says, then is
too late...

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