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Reflex Sympathetic Dystrophy

Reflex Sympathetic Dystrophy

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Posted by Sam G. Shannon on February 10, 2000 at 11:40:08:

I was dx with RSD in 1983, since then my life has been a roll-a-coster of active disease followed by remission. Always the disease seems to worsen, never returning to its previous point. My problem is that I was injured while on active duty. Thus the VA will only look at the injury to my hand, not the progression of the disease. In 1992 I began to have CNS symptoms (seizures and tremors). In 1995 I began to have renal symptoms with blood in my urine but the IVP and cystogram were normal. In 1998 I was dx with RSD in my left leg. The physician prescribed STADOL for the pain. My symptoms worsened and spread to my right leg. I have swelling so bad that the skin cracks and bleeds. The pain worsened, so I was seen by physicians within the VA system. The diagnosed me with RSD in my left arm, left leg, right leg, and right arm. I have been treated by the VA's pain clinic, or else I would never sleep. Finally, this year I developed vision problems. I see double and my vision is blurred. I was told to "pray" the disease got better because my vision is not correctable with glasses. Still the VA only considers my hand injury. I am currently on Neurotin, Depakote, Cardizem, Lasix, Potassium Chloride, Remeron, MS Cotinine, M Sulfate, multi-vitamins, and a Baby Aspirin. Has anyone else had an expewrience with RSD spreading and has anyone hasd an experience with RSD and the VA system?

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