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Re: Spinal Cord Stimulator/RSD

Re: Spinal Cord Stimulator/RSD

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Posted by Lee Ann on July 23, 2000 at 17:17:32:

In Reply to: Re: Spinal Cord Stimulator/RSD posted by Maria on July 23, 2000 at 00:04:34:

: : Sorry, I don't have any personal experience with an SCS, since I decided not to get one, but good luck with it!!! :-) And please, whatever you do, if it doesn't work, DO NOT get a sympathectomy. They're terrible for RSDer's, and 4/5 of the time, they harn people more than they help them.

: : Take Care, and Good luck!!!

: : ~Tiff

: Hi Tiff, Thank you for your response...Thats scary..because my Dr. has recommended that next if this SCS doesnt work...Thank you for the input.take care...Maria

Hi! I hope your SCS works as well as I know they can when done correctly. Good luck with your surgery. I do have to agree witth Tiff on the sympathectomy. I had one at about the two year point. Ideally it should have worked well because the sympathetic blocks worked so well for me, but it only gave me relief for about 2 months and then the pain was back full blown. Now I just have to deal with the unpleasant after effects of the sympathectomy. Believe me the not sweating is not as good as it sounds. You sweat twice as much everywhere else and you over heat easily. Plus I have residual pain from the sympathectomy itself. If there is one thing I could undo that I have done in my search for pain relief it would be the sympathectomy. Think carefully before you do it. If your sypmathetic blocks don't give you excellent relief, DON'T DO IT AT ALL. I do understand how desperate we get for pain relief I myself have tried it all, but don't jump into a neurodestructive surgery without very careful consideration. I will pray for you. Here is wishing you pain free days. Lee Ann

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