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Re: I'm new to this problem...

Re: I'm new to this problem...

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Posted by cindy on September 26, 2000 at 09:19:13:

In Reply to: I'm new to this problem... posted by Deborah on September 26, 2000 at 00:54:32:

I am 27 and have had the problem since 11/99. I have to say that i can totally relate to everything you just said. The frustration is INCREDIBLE/OVERWHELMING. No one understands. It is extremely hard cause you think that eventually with all the therapys/treatments you will be well and when the process keeps going on and on everyone around you thinks you are just milking it. I had a MINOR car accident in 10/98 and ever since it has been such trauma. I had a hip surgery in 10/99 after the months of PT etc before the surgery only to discover my pain was from a huge tear in my hip from the accident. When the doctor finally got me to a pain clinic it was what i call a chop shop they got you in there treated you like a number hurt you made you flare up and then sent you home to deal with it on your own. Anyways.. i say all this NOT to scare you because i do have a doctor now that is GREAT.. this doc works at the local hospital and is so caring/understanding.. if your doc does the block like him you will be fine. He gives me sedation before hand to help me relax and then i do flare up afterwards but the recovery room takes good care of me. My now husband (we just got married in july) is very sympatheic however he doesn't understand the condition at all. He can be very frustrating at times cause he too doesn't realize my limitations. I am finally walking again mine started in my hip, went to my foot/calf and that is where it has stayed. I do lots of exercise and am off of all meds. I do have to take pain killers from time to time. As for dealing with the pain and school/work. It isn't easy. I was taking oxycontin during the day and while that made me a lil drowsy it did help to take the edge off. I had missed so much work they were looking to replace me and i am one of these people that works ALL the time i hate disappointing people and feel if i am not there at work i am letting them down. Well i soon realized that i had to do what i could do to get myself well otherwise i was no good for anyone. do what you can. The other good med i was on was oxy ir that helped with the immediate release of the pain however i always fell asleep after taking that so that isn't a good one or it wasn't for me to take at work. Hopefully this block will work really well for you and you will soon have the much needed pain relief. Don't be surprised if it flares your pain up just remember it might get a lil worse before it gets better. I hope i am not scaring you more than you already are.. the blocks hopefully will work for you and if they do for you what they did for me then hopefully you will soon be on a plan to feeling better.
Please let me know if you have ANY questions.. i would be glad to help if i can.
hang in there and DON'T give up...

: Tomorrow morning I am going to Duke university to their Pain Clinic... Hopefully they will do my first nerve block. I'm kind of scared! I want to get better though! I guess I'd better introduce myself, that might be a better way to start...

: My name is Deborah. I am 19 and I go to college full-time and I work part time in retail. This summer I went on vacation- a week in Disney World- that resulted in a stress fracture in my right foot. No big deal, right?

: Well, the pain got worse. And worse. I'm sure you all understand. Swelling and bruising followed and still are there. The pain started around my "big toe" and had spread up into my foot also. I wore a cast for 6 weeks and the pain continued with no relief. After removing the cast I went for a bone scan which showed that something was wrong. After removal of the cast I noticed that my ankle was increasingly in pain, but I had written it off to a side effect of the cast. The bone scan showed that the ankle pain wasn't just stiffness.

: I finally got an appointment with a specialist. He referred me to the pain clinic and from there I should hopefully get some treatment.

: This is making my life SO hard. School is so horrible because I am just in so much PAIN all the time. And I go to a BIG school! After school I am expected to be on my feet nonstop for work. I LOVE my job and I don't want to quit! And I have SO many BILLS! Our health insurance is changing Nov. 1, also, so I don't know what to do!

: And nobody understands! Well, other students and the people at work don't. I haven't even told my boyfriend I have the disorder. He is so crappy about illness and stuff. When I first got the cast on my foot and everyone believed I had a fracture, he still was parking at the back of the parking lot and walking fast, etc. I don't know what to do! Everything is so HARD now! I'm just scared.

: What do you do about work and school? How do you get the pain to stop? The other day at work my foot was so swollen that it just began to bruise and turn purple before my eyes. I was whimpering with pain and my toe began bleeding out of nowhere; it was like the blood had nowhere else to go. I feel like everyone else is talking about me or thinking I want attention. I don't, I just want to go back to normal! It's like my leg has taken over a *painful and mean* mind of its own.

: Does the pain keep spreading?! Lately it has begun to shoot like a knife halfway up my shin. I can't sleep anymore; when I try to relax a tingling feeling fills my leg from ankle to thigh. I feel so pathetic and helpless and I feel like I have to act like I'm fine or I will make people mad. It's hard because its like I have to fake how I feel all the time. I dont want anyone to know I'm in pain because who wants to be around someone who is in pain all the time? I'm tired of hiding it though!

: And how do you explain it? I want people to understand that I don't want anything to be any different, I'm not going to be less fun or whine... I just may not like to walk super fast all the time and things like that. I don't want to lose my friends; I already feel like I am at work.

: I don't know what else to say, but I just wanted to get "started" on this board. I hope I can find some tips on here.

: Thank you for listening! Feel free to email me if you have any extra time. Thank you so much.

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