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RSD Spinal Chord Stimulator & Scar Tissue

RSD Spinal Chord Stimulator & Scar Tissue

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Posted by Annie on October 17, 2000 at 12:52:33:

I am a 29 yr. old female who was diagnosed with RSD 2 years ago; I wason disability for a year and then changed jobs so that I could work. It started with my knee locking, I had surgery to remove part of my medial meniscus in the right knee, then had extensive scarring (arthrofibrosis) which re-locked my knee, and I had a second knee surgery to break up the scar tissue so I could move my knee. The RSD has now spread to my other leg as well.I have tried many types of meds for the RSD, some work a bit, but nothing works well, and I am currently on a lot of meds. I have had multiple lumbar blocks and had relief, but only for 36 - 72 hours at best. I had 2 spinal chord stimulators implanted; the first worked for about 4 weeks then the pain came back just as bad as before. The first stim wore through my back from the inside out because I'm fairly thin, so 6 mo's after it was implanted, my doctor went in to push it down another couple of inches. It was supposed to be a minor surgery which ended up taking 6 hours with me out of work again for 2 weeks because the stim was so surrounded by scar tissue that it was nearly impossible to revise it - so they removed the stim (cutting an 18" gash in my back) and implanted another one. The second one worked great - for the first 4 weeks, and has now stopped working again. Both times, I was still getting stimulatuion to the correct areas & the stimulation was very high but for some reason my pain was still able to overcome the stimulator's signals. This all started with scar tissue and the first stim was so fibrosed it took 6 hours to get it out - could the car tissue problem I have cause the stim to not work optimally? Both stims worked well initially, then after 4 weeks stopped helping - it seems more than a coincidence and I wonder if 4 weeks is about the time it'd take for the scar tissue to grow to such an extent that it interrupts the success of the stimulator. Any thoughts or ideas on this? Any recommendations on doctors or researchers I can talk to about this situation? Any help you can provide would be immensely appreciated.

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