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Re: question regarding the pain

Re: question regarding the pain

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Posted by Pixie on October 04, 1999 at 00:06:38:

In Reply to: question regarding the pain posted by kathryn on September 23, 1999 at 21:13:47:

: Hi kathryn
The pain you describe sounds like rsd. The pain at the slightest touch is something called allodynia, pain resulting from a stimulus that should not cause pain. It seems to be a common hallmark of RSD, particularly in the earlier stages. What you need to do is get a clinical disagnosis. I know about no one listening! What about the Pain Clinic? It soulds like there is someone there that may know something about RSD.They can do tests such as a themogram that will help disgnose RSD. Have you had any sympatethic blocks? Bone scans? The important thing is to get a definitive clinical diagnosis. This can be done. If you have RSD you should start an appropriate treatment ASAP. About the pain being eposodic...well I went into a sort of semi-remission for almost a year, and then the RSD came back full blast. RSD can sort of do its own thing, so get the tests for a diagnosis. Don't give up!

: hello, I was told that I may have RSD. I was in a car accident two years ago, and the steering wheel smashed into my legs. In exactly the spots where the steering wheel smashed my legs, I have had this severe burning pain. It became extreme about five months after the accident, and all of a sudden my legs would just "give way" and I would have no strength in them. No one has helped me. They've thought, "MS", then "blood clots." then "poor circulation." I have told dr after dr. that I think there's nerve damage because it mimicks that, but no one listens. Well, a person from a pain center, (I didn't even know there were such things), told me I sound like I have RSD. The pain is burning and the slightest touch to my skin feels like someone is burning me. AFter two years, my blood vessels in my legs are starting to pop, and the weakness is getting worse. I have gained a lot of weight from lack of movement. But I was wondering...sometimes the pain will go away for a few weeks or so, and then come back for a good long episode. When the pain does come back...NOTHING will relieve it. NOTHING!!! IT just comes when it wants to, and leaves when it wants to...question..."does the pain of RSD act "episodic" like that?" Any answers would be most appreciated.

: love kathryn

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