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Re: Leg Cramps

Re: Leg Cramps

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Posted by Jami Beckner on November 13, 2000 at 11:51:27:

In Reply to: Leg Cramps posted by Becky Summerville on October 19, 2000 at 13:22:00:

: It started several months ago with my grandson (2 1/2 years old) being woke up in the middle of the night
: thrashing around in pain. It starting happening more frequently. It got so bad that they were lasting
: up to 20 minutes. He has had an MRI, EEG, had a biopsy taken of this stomach, intestine and colon,
: and been to a neurologist. Everything has come back good. They are saying it is cramps. The last couple
: of months the episodes happen during his nap time instead of night. There doesn't seem to be a pattern.
: In addition to having the pain in his legs he says his lower back hurts and now his arms. He seems to be
: very sensitive to things touching him, like sitting in his car seat can be painful to him.
: Has anyone heard of anything like this or has experienced this? Help. My son is 2yrs old and is experiencing the same symptoms as your grandson! He has had all the same tests ran even a bone scan for cancer! His pain is in arms sometimes and always in legs. His neurologist diagnosed him with RLS and put him on Neurontin, but he has increased the dosage already and the symptoms are returning! It is a very SCARY illness since there doesn't seem to be much you can do! We have to give him Tylenol with codeine for the pain sometimes and they even prescribed Valium when they saw him have one of the severe cramp fits in the ER! I read everything I can and I am trying the temperature thing and taking sugar out of the diet seems to help some. If anyone has any suggestions PLEASE tell us our child is in pain ALOT and we rarely get any sleep! I fear he may never even be able to attend school or lead a normal life because of this illness! Thanks! Jami

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