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Re: This thing called Narcolepsy!

Re: This thing called Narcolepsy!

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Posted by Mike Ballew on October 21, 2000 at 03:35:43:

In Reply to: This thing called Narcolepsy! posted by Leathan on September 03, 2000 at 08:28:57:

: Hello there!

: With regards Narcolepsy , can it be induced/aggravated by exertion. My point is how do you distinguish narcolepsy overwhelming fatigue from the post exertional (again) overwhelming fatigue of Chronic Fatigue Syndrome? But
: Also - with narcolepsy is it possible for these overwhelming attacks to strike but just try to fight them off and stay up and about rather than them gaining the upper hand and sending you to sleep. Is it possible then to get into a vicious cycle when you don't want to go to sleep when these attacks happen , you do something exertional and then end up with an array of awful symptoms and pain which overlap with Chronic Fatigue Syndrome.

: cheers

I have been under treatment for narcolepsy for about 41 years. I took about 80mgs of ritalin per day for about 35 years, but I switched to dexedrine about 4 or 5 years ago. About the same results-nothing is perfect.
First, I don't believe exertion effects it one way or another. B ut, I don't know of any relationship to chronic fatigue syndrome. I know that when I have sleepy spell coming on, there isn't much I can do about it. I usually take a nap for 15-20 minutes until it goes away.
The overwhelming attacks occur generally at particular times of the day. You don't let the get the upper hand- they just do!! If you fight one off, it has no effect on the next one. In other words, it doesn't become a vicious circle. They just happen.
I hope I have helped you. Narcolepsy is a horrible affliction to have, believe I know. I am retired now, but it still keeps me from doing a lot of things that I would like. There is no medication that is 100 %m more like 75 %.

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