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Re: HELP! Thank you, but here I go AGAIN!

Re: HELP! Thank you, but here I go AGAIN!

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Posted by Mandy Sonnenfeld on May 09, 2000 at 17:59:11:

In Reply to: HELP! syringomyelia-need info posted by Mandy Sonnenfeld on April 17, 2000 at 20:50:40:

: I'm 19yo and have a cervical syrinx at C6 & C7 that was taking up 40% of the inside diameter of my spinal cord. I had a cervical shunt put in to drain it in Dec.but it had to be removed in Jan. due to infection.
: The infection was quite serious. I no longer have the shunt, but a recent MRI showed the syrinx did shrink. After the two surgeriies I had I now have numbness and tingling
: in both legs and have trouble walking. I also have been put on steroids for what my doctor calls spinal swelling with residual fluid, I have been put on them 3 times now.
: Everytime I go off them I have severe upper back pain. Also, any time I do "too much" in one day (ex: dinner and a movie) I end up in severe pain the next day.
: I have pain in both of my arms that feels like I am constantly hitting my funny bone with tingling in my hands. My right hand is also sensitive. My doctor just says it is
: going to take time. The thing is the only problem I had before my first surgery was lower back pain with muscle spams. I am looking for any info that anyone can give me. Please help.
: I am 19 and would like to return to my life instead of the hospital bed every month or my living room couch!

:Thank you everyone for your words of encouragement, but I now have to go back in to surgery for my fourth one. This one is due to tethering! The doctor said that there is
scar tissue connecting my spinal cord to the outer membrane and that is what is causing the tingling in my hands. I am quite concerned about this surgery I am afraid I
will recieve more nerve damage to my legs. Any info on this type of surgery where they remove the scar tissue would be helpful.

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