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Re: Looking for someone that shares my symptoms...please read!

Re: Looking for someone that shares my symptoms...please read!

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Posted by Dee on November 06, 2000 at 11:31:04:

In Reply to: Re: Looking for someone that shares my symptoms...please read! posted by John B on November 05, 2000 at 01:13:51:

: : I am 39, used to be very active. Aerobics instructor, I own my own fitness ctr. I started having problems 8 years ago. Neck pain, lightheaded, dizzy, headaches in the back of my head. I mostly went to a chiro. 3 years ago my chiro said get an mri, it showed a disc hernation at c5-c6. Did PT but things just got worse. I had a couple bad falls and got hit in head with a heavy ladder. Two years ago I gotten woken up with a very strong, electric shock feeling in the back of my head. I only get it when I lay down flat. I now also get vertigo, the room gently turns when I lay down flat and turn my head left. I also have muscle movement on the right side of my face 24/7. My arms and hands fatique quickly and my hands have begun to atrophy. I have been looking for answers for two years. I have had ear tests and surgery. The only thing found is a disc herniation with a large bone spur at the c5-c6 level. It is moderetely compressing the cervical cord. My neuro thinks that I should have surgery to remove the bone spur and disc but does not seem quite convinced that is causing all these problems. I have had all the blood tests, head MRI and Auditory Brainstem test. All neg. Because of the constant neck spasms, I am told I am only using my eyes for balance. I have been looking on the net for years to find someone with similar symptoms who may have gotten a dx. If you are out there please respond. Thank you this message board has been very helpful.

: : Linda

: Howdy!! Some of your symptoms in your hands and arms sound like they could be well related to the problems at C5-6. The head problems sound more like you have had severe head trauma. I have had similar experiences. I am now 51. When I was 9, I was hit by a car and sustained severe concusion and fracture on my head. Back then, all they did was shoot me full of Tetnus and ice up my head. They did not find out that I had crushed C4-5-6. After several really rough years in school, I pretty well recovered. Years later I had lots of headaches and bee sting sensations all over. It got better with using Dylanton. A few years later, I started having spells of numbness and tinglling alover. It got better with Nueronton. Recently my right arn has been going completely dead, and several times this has happened to my legs. Now, finally, they have found the problem at C4-5-6. I get surgury next Monday. If I am lucky, it will fix about half of my symptoms. I ccan certainly live with that. I feel that I have been very lucky. For 41 years, I have been very active, in my ignorance of the fact that my spinal cord is 75% pinched closed at C5. I have water and snow skied, skated, mountain climbed, driven crazy, played football, etc. etc. but I have never done any more damage to my spine. Monday, the surgury will eliminate the fear and the risk that I have been aware of for only a month since my neck was first diagnosed. I would suggest going for the spinal surgury first, and then see what, if any symptoms remain. Then start looking for some other problem. Go one step at a time. Eliminate one factor from the equaison of pain and suffering, and then see what else needs to be delt with. I will post the results of my surgury late next week. Good luck and get better!! JoHn

Although you both have had traums to the neck area, was just wondering have you been checked for MS or ALSo?


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