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Re: How Do I Cope? Please Help.

Re: How Do I Cope? Please Help.

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Posted by Sandy on July 24, 2000 at 20:46:11:

In Reply to: How Do I Cope? Please Help. posted by venting on July 24, 2000 at 02:25:52:

: My loved one is currently in the ISU. Suffered a massive stroke. I'm having a serious problem with a couple of the nurses and particular family members.

: It seems as though nothing is sacred. Meaning even when my loved one is trying to have a bowel movement, the room is full of people. I'm so incredibly SICK of the lack of privacy.

My husband, too, had a massive stroke almost 3 years ago. He was unable to eat "as a person" until he relearned (which didn't take real long), he couldn't take care of himself in any way and that included all you're talking of. Yes, he does remember most of it, but only when it is brought to mind in conversation. He may be embarrassed about what happened but realizes that he had no choice and is very grateful for having come such a long way now that he can remember and talk about it. He is still very injured by the stroke, but both us of realize that it could have been worse, and that maybe recovery would not have been as great as it is. Try to keep a good attitude for him and yourself. You both have a long and hard road to travel, but you can make it -- there are lots of us that have traveled that same road. Let me know if you need to "talk", I, too have included my e:mail address.

: I understand the sponge baths, the clean-up and so forth but can't he have a moment of peace when trying to go to the bathroom.

: Tonight I told the nurse several times that I would let her know when he was finished. That didn't stop her from checking in every minute, which made him uncomfortable and therefore did not go.

: It got to the point of her threatening me, saying that, "technically visiting hours are over and she can make me leave if she wants to".

: How do I deal with this and stay sane? (He is not to point yet of speaking for himself.)

: All I want is a quick recovery. Though it looks like I'm going to be dealing with this situation for at least another 2 weeks.

: Any suggestions?

: I've reached the point where I don't even want to visit. It's breaking my heart. What happened to a little decency and respect.

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