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Posted by Samantha on August 01, 2000 at 20:08:18:

In Reply to: Re: I can relate a lot! posted by Tina on August 01, 2000 at 16:02:11:

Tina, Yada and Tree Frog - thanks for responding. I got a referral to an endo today and I go on August 7th {:0) I ended up having to ask a Nurse Practitioner in the same clinic to look over my chart to get the referral. Yada, I think your ER idea is a good one. You can't be expected to 'just deal with' those types of symptoms!
Tina, were your levels much higher than mine when you were diagnosed? My Dr has told me that my levels are mostly on the high end of normal, not really elevated and I shouldn't really be having problems because almost all hyperthyroid patients show levels two to three times higher than mine.

: : I have had most of the same symptoms as you. I am 26 yrs and I too am going back to school in the fall. I do have mostly hypo symptoms but my t3 levels are slighly elevated. I did see an endo and he has pretty much brushed me off and said I was hyper. At least you got numbers, I couldn't except the t3. He says that I am fine with the exception that I need to lower my dosage. I had thyroid surgery last year for a second time. I had parathyroid surgery 3mths ago. In between that time I was at the dosage the doctor is recommending me go to. I had massive migranes and was always sick. My endo has pretty much thrown up his hands and said I don't know and let it go. I need to get something done because my heart beats way too fast or too slow. It is always at 130 and when I am laying down and resting for at least a half hour it drops to 40. This causes me to pass out a lot and gives me chest pains when I have to get up from sitting or lying down. I also have a slight heart murmur that was diagnosed last January. Now I don't think it is so slight anymore. I have an extreme intolerance to cold, my hands and feet turn blue. I have debated to go to the ER because of being dismissed so quickly by other doctors that I might get dismissed again. But I've tried to see my primary care as well as my endo about it and I can't seem to get in when the problem is really bad so they know what I am talking about. ER would be the only time to do it and catch it before something really bad happens. I do have a high tolerance to pain, I don't go to the doctor for every sniffle either. My primary knows that very well. I end up in surgery every time I see him about something. He wants to help but doesn't have much of an idea as to where to go from here. One thing I do know. A doctor who will sit and listen and say how can I help you feel better and see you in person with followups is the best kind to have. Finding one however is like winning the lottery. If I can make any headway, I'll let you know. In the meantime I hope you will let me know how your search is going. Be well.

: Hi Samatha and Yada,

: Thought you both might be interested in looking over the Doctor's listed at Mary Shomon's Top Doc site!
: They are Doctors that other patients with Thyroid Disorders have found and recommended. They are
: listed by state's and there is a forum to ask for recommendations there also. You will have to sign up but it only takes a
: few seconds and is well worth it! Getting a good Doc is 99% of the battle, isn't it? Hope the link works.

: BTW..I've had many of the same problems that both of you have had with Doctor's so it certainly isn't us, but the quality of Doctors out there that is the problem!

: Good Luck,
: Tina

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